In January of 2007, we took our 5-month old daughter, Carson, to Johns Hopkins Hospital because she was having what appeared to be seizures. Twelve hours, a spinal tap and an EEG scan of her brain later we were told that she has a rare form of Epilepsy called “Infantile Spasms”. There are no words to describe the emotions we experienced upon hearing the news that our daughter had about a 20% chance of recovering. Fortunately for us, Johns Hopkins has one of the best pediatric epilepsy programs in the country so we were immediately seen by specialists who have hands on experience with this rare disorder. We were offered multiple forms of treatment, including a regiment of steroids called ACTH, Vigabatrin, Topamax and a more radical approach that Hopkins happens to specialize in called the ketogenic diet.
To increase awareness on the issues that affect individuals with epilepsy and raise funds in support of clinical and research efforts on the diagnosis of epilepsy and its treatment including, but not limited to, diets, surgery, and anticonvulsant medications.
For more information, contact The Carson Harris Foundation by clicking here today!